
OpenAlex is a bibliographic catalogue of scientific papers, authors and institutions accessible in open access mode, named after the Library of Alexandria. It's citation coverage is excellent and I hope you will find utility in this listing of citing articles!
If you click the article title, you'll navigate to the article, as listed in CrossRef. If you click the Open Access links, you'll navigate to the "best Open Access location". Clicking the citation count will open this listing for that article. Lastly at the bottom of the page, you'll find basic pagination options.
Requested Article:
Development of a patient journey map for people living with cervical dystonia
Monika Benson, Alberto Albanese, Kailash P. Bhatia, et al.
Orphanet Journal of Rare Diseases (2022) Vol. 17, Iss. 1
Open Access | Times Cited: 23
Monika Benson, Alberto Albanese, Kailash P. Bhatia, et al.
Orphanet Journal of Rare Diseases (2022) Vol. 17, Iss. 1
Open Access | Times Cited: 23
Showing 23 citing articles:
A patient journey map for people living with autoimmune pulmonary alveolar proteinosis
Ali Ataya, Niki Plomaritis, Michele Rhee, et al.
Respiratory Medicine (2025) Vol. 240, pp. 107990-107990
Closed Access
Ali Ataya, Niki Plomaritis, Michele Rhee, et al.
Respiratory Medicine (2025) Vol. 240, pp. 107990-107990
Closed Access
Capturing Real‐World Rare Disease Patient Journeys: Are Current Methodologies Sufficient for Informed Healthcare Decisions?
Kristen A. Cribbs, Louise Blackmore, A Banks, et al.
Journal of Evaluation in Clinical Practice (2025) Vol. 31, Iss. 1
Open Access
Kristen A. Cribbs, Louise Blackmore, A Banks, et al.
Journal of Evaluation in Clinical Practice (2025) Vol. 31, Iss. 1
Open Access
Patient Burden in Dystonia Diagnosis and Botulinum Toxin Treatment: A Nationwide Survey in Turkey
Rezzak Yılmaz, Nevra Öksüz, Mustafa Ceylan, et al.
Brain and Behavior (2025) Vol. 15, Iss. 3
Open Access
Rezzak Yılmaz, Nevra Öksüz, Mustafa Ceylan, et al.
Brain and Behavior (2025) Vol. 15, Iss. 3
Open Access
Illustrating User Needs for eHealth With Experience Map: Interview Study With Chronic Kidney Disease Patients
Paula Valkonen, Sini Hölsä, Johanna Viitanen, et al.
JMIR Human Factors (2025) Vol. 12, pp. e48221-e48221
Open Access
Paula Valkonen, Sini Hölsä, Johanna Viitanen, et al.
JMIR Human Factors (2025) Vol. 12, pp. e48221-e48221
Open Access
Protocol and Demographics of the RELY-CD Study: Assessing Long-Term Clinical Response to Botulinum Neurotoxin in Cervical Dystonia
Benjamin Waeschle, John‐Ih Lee, Tristan Kölsche, et al.
Toxins (2025) Vol. 17, Iss. 4, pp. 180-180
Open Access
Benjamin Waeschle, John‐Ih Lee, Tristan Kölsche, et al.
Toxins (2025) Vol. 17, Iss. 4, pp. 180-180
Open Access
Genetic Update and Treatment for Dystonia
Jan Koptielow, Emilia Szyłak, Olga Szewczyk‐Roszczenko, et al.
International Journal of Molecular Sciences (2024) Vol. 25, Iss. 7, pp. 3571-3571
Open Access | Times Cited: 3
Jan Koptielow, Emilia Szyłak, Olga Szewczyk‐Roszczenko, et al.
International Journal of Molecular Sciences (2024) Vol. 25, Iss. 7, pp. 3571-3571
Open Access | Times Cited: 3
The COVID-19 pandemic impact on continuity of care provision on rare brain diseases and on ataxias, dystonia and PKU. A scoping review
Sara Cannizzo, Vinciane Quoidbach, Paola Giunti, et al.
Orphanet Journal of Rare Diseases (2024) Vol. 19, Iss. 1
Open Access | Times Cited: 2
Sara Cannizzo, Vinciane Quoidbach, Paola Giunti, et al.
Orphanet Journal of Rare Diseases (2024) Vol. 19, Iss. 1
Open Access | Times Cited: 2
Child-to-adult transition: a survey of current practices within the European Reference Network for Rare Neurological Diseases (ERN-RND)
Lorenzo Nanetti, Mary Kearney, Sylvia Boesch, et al.
Neurological Sciences (2023) Vol. 45, Iss. 3, pp. 1007-1016
Closed Access | Times Cited: 6
Lorenzo Nanetti, Mary Kearney, Sylvia Boesch, et al.
Neurological Sciences (2023) Vol. 45, Iss. 3, pp. 1007-1016
Closed Access | Times Cited: 6
New developments in diagnostics and treatment of adult-onset focal dystonia
Liesanne M. Centen, Martje E. van Egmond, Marina A.J. Tijssen
Current Opinion in Neurology (2023)
Open Access | Times Cited: 5
Liesanne M. Centen, Martje E. van Egmond, Marina A.J. Tijssen
Current Opinion in Neurology (2023)
Open Access | Times Cited: 5
Understanding Experiences of Caregivers of Spouses With Dementia During Caregiver Health Care Emergencies
Andrea E. Daddato, Kathy Gleason, Blythe Dollar, et al.
The Gerontologist (2024) Vol. 64, Iss. 7
Open Access | Times Cited: 1
Andrea E. Daddato, Kathy Gleason, Blythe Dollar, et al.
The Gerontologist (2024) Vol. 64, Iss. 7
Open Access | Times Cited: 1
The Application of Goal Attainment Scaling in Cervical Dystonia – An Exploratory Observational Pilot Study
Máté Szabó, Gabriella Gárdián, László Szpisjak, et al.
Movement Disorders Clinical Practice (2024) Vol. 11, Iss. 8, pp. 1013-1017
Open Access | Times Cited: 1
Máté Szabó, Gabriella Gárdián, László Szpisjak, et al.
Movement Disorders Clinical Practice (2024) Vol. 11, Iss. 8, pp. 1013-1017
Open Access | Times Cited: 1
Literature Review on Health Emigration in Rare Diseases—A Machine Learning Perspective
Małgorzata Skweres-Kuchta, Iwona Czerska, Elżbieta Szaruga
International Journal of Environmental Research and Public Health (2023) Vol. 20, Iss. 3, pp. 2483-2483
Open Access | Times Cited: 3
Małgorzata Skweres-Kuchta, Iwona Czerska, Elżbieta Szaruga
International Journal of Environmental Research and Public Health (2023) Vol. 20, Iss. 3, pp. 2483-2483
Open Access | Times Cited: 3
The utilisation of primary health care system concepts positively impacts the assistance of patients with rare diseases despite limited knowledge and experience by health care professionals: A qualitative synopsis of the evidence including approximately 78 000 individuals
Raquel Lemos Ferreira, Israel Júnior Borges do Nascimento, Victor Izidro Alves de Almeida, et al.
Journal of Global Health (2023) Vol. 13
Open Access | Times Cited: 2
Raquel Lemos Ferreira, Israel Júnior Borges do Nascimento, Victor Izidro Alves de Almeida, et al.
Journal of Global Health (2023) Vol. 13
Open Access | Times Cited: 2
Eligibility criteria in clinical trials for cervical dystonia
Andrea Vergallo, Antoniangela Cocco, Tiziana De Santis, et al.
Parkinsonism & Related Disorders (2022) Vol. 104, pp. 110-114
Closed Access | Times Cited: 3
Andrea Vergallo, Antoniangela Cocco, Tiziana De Santis, et al.
Parkinsonism & Related Disorders (2022) Vol. 104, pp. 110-114
Closed Access | Times Cited: 3
Emotional journey of patients with specified intractable diseases in Japan
Hiroyuki Tanaka, Mikiko Shimaoka
Intractable & Rare Diseases Research (2024) Vol. 13, Iss. 1, pp. 57-62
Open Access
Hiroyuki Tanaka, Mikiko Shimaoka
Intractable & Rare Diseases Research (2024) Vol. 13, Iss. 1, pp. 57-62
Open Access
Dual-Perspective Modeling of Patient Pathways: A Case Study on Kidney Cancer
Anna Grøndahl Larsen, Ragnhild Halvorsrud, Rolf Eigil Berg, et al.
Communications in computer and information science (2024), pp. 51-68
Open Access
Anna Grøndahl Larsen, Ragnhild Halvorsrud, Rolf Eigil Berg, et al.
Communications in computer and information science (2024), pp. 51-68
Open Access
The untold emotional toll of navigating the health system: the journey of patients in/from India, living with serious and/or chronic conditions
Clarinda Cerejo
Current Medical Research and Opinion (2024) Vol. 40, Iss. 9, pp. 1605-1613
Open Access
Clarinda Cerejo
Current Medical Research and Opinion (2024) Vol. 40, Iss. 9, pp. 1605-1613
Open Access
A qualitative exploration of the patient journey in axial spondyloarthritis towards a people-centered understanding
Kristina Berr, Stefanie Ziehfreund, Martin Welcker, et al.
Scientific Reports (2024) Vol. 14, Iss. 1
Open Access
Kristina Berr, Stefanie Ziehfreund, Martin Welcker, et al.
Scientific Reports (2024) Vol. 14, Iss. 1
Open Access
Exploring Journey Maps as Products From Qualitative Research: Application Through Food Insecure Veterans’ Experiences
Trenton M. Haltom, Nipa Kamdar
Qualitative Health Research (2024)
Closed Access
Trenton M. Haltom, Nipa Kamdar
Qualitative Health Research (2024)
Closed Access
Mapping the journey of patients and care partners living with adult-onset leukoencephalopathy with axonal spheroids and pigmented glia: developing a framework for improvements in care
Holly A. Rutherford, Beth Rush, Adam R. Smith, et al.
Neurodegenerative Disease Management (2024), pp. 1-12
Open Access
Holly A. Rutherford, Beth Rush, Adam R. Smith, et al.
Neurodegenerative Disease Management (2024), pp. 1-12
Open Access
Mapping the diagnostic odyssey of congenital disorders of glycosylation (CDG): insights from the community
Pedro Granjo, Carlota Pascoal, Diana Gallego, et al.
Orphanet Journal of Rare Diseases (2024) Vol. 19, Iss. 1
Open Access
Pedro Granjo, Carlota Pascoal, Diana Gallego, et al.
Orphanet Journal of Rare Diseases (2024) Vol. 19, Iss. 1
Open Access
The organizational dimension in rare diseases care management: an application of RarERN Path© methodology in the rare neurological diseases Ataxia, Dystonia and Phenylketonuria
Sara Cannizzo, Vinciane Quoidbach, Monika Benson, et al.
Research Square (Research Square) (2023)
Open Access
Sara Cannizzo, Vinciane Quoidbach, Monika Benson, et al.
Research Square (Research Square) (2023)
Open Access
Illustrating User Needs for eHealth With Experience Map: Interview Study With Chronic Kidney Disease Patients (Preprint)
Paula Valkonen, Sini Hölsä, Johanna Viitanen, et al.
(2023)
Closed Access
Paula Valkonen, Sini Hölsä, Johanna Viitanen, et al.
(2023)
Closed Access