OpenAlex Citation Counts

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OpenAlex is a bibliographic catalogue of scientific papers, authors and institutions accessible in open access mode, named after the Library of Alexandria. It's citation coverage is excellent and I hope you will find utility in this listing of citing articles!

If you click the article title, you'll navigate to the article, as listed in CrossRef. If you click the Open Access links, you'll navigate to the "best Open Access location". Clicking the citation count will open this listing for that article. Lastly at the bottom of the page, you'll find basic pagination options.

Requested Article:

“It seems like COVID-19 now is the only disease present on Earth”: living with a rare or undiagnosed disease during the COVID-19 pandemic
Meghan C. Halley, Talia Stanley, Jay Maturi, et al.
Genetics in Medicine (2021) Vol. 23, Iss. 5, pp. 837-844
Open Access | Times Cited: 31

Showing 1-25 of 31 citing articles:

Changes in Access to Health Services during the COVID-19 Pandemic: A Scoping Review
Georgina Pujolar-Díaz, Aida Oliver Anglès, Íngrid Vargas, et al.
International Journal of Environmental Research and Public Health (2022) Vol. 19, Iss. 3, pp. 1749-1749
Open Access | Times Cited: 202

“Lack” and “Finally”: A Qualitative Analysis of Barriers and Facilitators in Rare Disease Healthcare
Amanda R. Hemmesch, Kathleen R. Bogart, Erica Barnes
International Journal of Environmental Research and Public Health (2025) Vol. 22, Iss. 1, pp. 117-117
Open Access

A 6-Year Retrospective Study in Surgery Patients with Thyroid Diseases in Mureș County, Romania, Before and During the COVID-19 Pandemic
Ramona Cătană, Adela Nechifor-Boilă, Ancuţa Elena Zahan, et al.
Diagnostics (2025) Vol. 15, Iss. 3, pp. 287-287
Open Access

Recruitment Strategies for a Nonhospital-Based Academic Rare Disease Biobank in South Africa
Engela H. Conradie, Varushka Acton, Albe C. Swanepoel
Biopreservation and Biobanking (2025)
Closed Access

The psychosocial situation of families caring for children with rare diseases during the COVID-19 pandemic: results of a cross-sectional online survey
Lydia Rihm, Mareike Dreier, Farhad Rezvani, et al.
Orphanet Journal of Rare Diseases (2022) Vol. 17, Iss. 1
Open Access | Times Cited: 16

Impact of the COVID-19 pandemic on health care and daily life of patients with rare diseases from the perspective of patient organizations – a qualitative interview study
David Zybarth, Maja Brandt, Christine Mundlos, et al.
Orphanet Journal of Rare Diseases (2023) Vol. 18, Iss. 1
Open Access | Times Cited: 10

Self‐reported quality of life in symptomatic and asymptomatic women with X‐linked adrenoleukodystrophy
Lisa Schäfer, Hannes Roicke, Christa‐Caroline Bergner, et al.
Brain and Behavior (2023) Vol. 13, Iss. 3
Open Access | Times Cited: 9

A shock to the (health) system: experiences of adults with rare disorders during the first COVID-19 wave
Kathleen R. Bogart, A. Hartinger, M Klaus, et al.
Orphanet Journal of Rare Diseases (2024) Vol. 19, Iss. 1
Open Access | Times Cited: 3

Impact of the COVID-19 pandemic on the care of rare and undiagnosed diseases patients in France: a longitudinal population-based study
Louis Soussand, Mathieu Kuchenbuch, Claude Messiaen, et al.
Orphanet Journal of Rare Diseases (2022) Vol. 17, Iss. 1
Open Access | Times Cited: 10

Perspectives of Rare Disease Social Media Group Participants on Engaging With Genetic Counselors: Mixed Methods Study
Megan Yabumoto, Emily G. Miller, Anoushka Rao, et al.
Journal of Medical Internet Research (2022) Vol. 24, Iss. 12, pp. e42084-e42084
Open Access | Times Cited: 9

From “Ought” to “Is”: Surfacing Values in Patient and Family Advocacy in Rare Diseases
Meghan C. Halley
The American Journal of Bioethics (2021) Vol. 21, Iss. 12, pp. 1-3
Open Access | Times Cited: 7

Health-related quality of life (HRQoL) and psychological impact of the COVID-19 pandemic on patients with myasthenia gravis
Irune García, Óscar Martínez, Juan Francisco López Paz, et al.
Intractable & Rare Diseases Research (2023) Vol. 12, Iss. 2, pp. 88-96
Open Access | Times Cited: 2

A qualitative evaluation of patient and parent experiences with an undiagnosed diseases program
Dorothea Siebold, J. E. Denton, Anna Hurst, et al.
American Journal of Medical Genetics Part A (2023) Vol. 194, Iss. 2, pp. 131-140
Open Access | Times Cited: 2

COVID-19 pandemic experiences of parents caring for children with oesophageal atresia/tracheo-oesophageal fistula
Alexandra Stewart, Christina H. Smith, Simon Eaton, et al.
BMJ Paediatrics Open (2021) Vol. 5, Iss. 1, pp. e001077-e001077
Open Access | Times Cited: 4

Living with rare genetic disease during the COVID-19 pandemic: A qualitative study of adolescents and young adults with Li-Fraumeni syndrome
Allison Werner‐Lin, Payal P. Khincha, Ashley S. Thompson, et al.
Rare (2024) Vol. 2, pp. 100034-100034
Open Access

Pandemic preparedness needs for children with rare diseases and their families: A perspective of COVID-19 experiences
Jessica Keeley, Aysha Stroobach, Meg Huston, et al.
Rare (2024) Vol. 2, pp. 100039-100039
Open Access

Short Communication: Restrictions in care following the COVID-19 pandemic severely impacted Machado-Joseph disease patients: a study in the Azores Islands, Portugal
Daniela Couto, Liliana Sousa, Jorge Sequeiros, et al.
Journal of Community Genetics (2022) Vol. 13, Iss. 4, pp. 459-461
Open Access | Times Cited: 2

The COVID‐19 pandemic's impact on worry and medical disruptions reported by individuals with chromosome 22q11.2 copy number variants and their caregivers
Lauren K. White, T. Blaine Crowley, Brenda Finucane, et al.
Journal of Intellectual Disability Research (2022) Vol. 66, Iss. 4, pp. 313-322
Open Access | Times Cited: 1

The Burden of COVID-19 on Caregivers of Children with Suspected Genetic Conditions: A Therapeutic Odyssey
Margaret Waltz, Courtney Canter, Jeannette T. Bensen, et al.
Physical & Occupational Therapy In Pediatrics (2022) Vol. 43, Iss. 3, pp. 257-271
Open Access | Times Cited: 1

Effects of COVID-19 Pandemic on PEM Fellowship Training
Thuy L. Ngo, Derya Caglar, Lisa R. Yanek, et al.
Research Square (Research Square) (2023)
Open Access

Machine learning for decision making in medicine and healthcare
Ivan Ivanov Borislava Toleva
Journal of Pharmaceutical Negative Results (2023), pp. 2508-2516
Open Access

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